Today is Thanksgiving which is my very favorite holiday. Yes, we're spending it in the last place in the world I would want to be, but I'm trying to still count my blessings. I have a beautiful baby girl, who is the most inspiring little lady. I have the most amazing son in the world, who got to come visit me yesterday. We spent some time together on the hospital playground having a picnic and playing on the toys. We also did some praying together for Ellis. "Dear Jesus, heal sister. We love you." -Milo I adore the prayers of children.
I really have no big update to give. Yesterday was a day where we didn't make any real strides forward. Things remained largely the same. I'm such a results driven person that days like yesterday can be super frustrating for me. That's when I stop and say, well she didn't go backwards so today was a good day.
In talking to her Doctor, the absolute biggest prayer request we have for her now is no more seizures. Until the seizures stop we won't be able to get her off most of the meds. We also won't be able to get her off the vent. The seizures are the big blockade in the road that keep more improvement at bay. They're not the seizures you can see. They're only detectable from the small EEG machine attached to her head. I get updates typically twice a day from her neurology team and every day they come in and tell me, she's still seizing. We need this to stop and to stop quickly. This has all been a slow process. I wish I could somehow make it go faster. But I know we will get to where we need to be, somehow and someway.
After this experience the Thanksgiving holiday will hold new meaning moving forward. It's not about the Macy's parade I typically watch that morning, my favorite green bean casserole or the Black Friday deals (which I wasn't a fan of any way!). All of those creature comforts have been taken from us for this years Thanksgiving. Still, this will be the holiday we remember the most, because this is the one that mattered the most. Never again will this day pass without being a reminder, once again, of how precious life is, the things that really matter and how blessed we are. When you have it all stripped away you realize what's truly at the core of importance. As much as I hate to have that truth driven home by my current circumstance I'm truly so thankful for the way life teaches me these lessons, even through the most painful of moments.
Thank you for your continued prayers for my girl. Hope you and your family have a wonderful Thanksgiving holiday.
Because he loves me,” says the Lord, “I will rescue him; I will protect him, for he acknowledges My name. He will call on me, and I will answer him; I will be with him in trouble, I will deliver him and honor him. With long life I will satisfy him and show him my salvation.”