Ellis Update-19

I apologize it has been awhile since my last update. With the abundance of traffic we've had to the site we've had to do several different space upgrades. When we did the last one it affected my email list and unfortunately my Christmas post wasn't emailed out to you. All that said, I believe we have all the site issues taken care of now. Special thanks to Lindsey at LL Studio for her help. She's amazing (and on Facebook if you want to look her up for your website needs). Now for an update on our family. We made it through the holidays. Anyone who's lost someone understands that statement. The holidays are different for people like us. It's often something we are relieved to make it through. This year was no exception. My husband was so, so missed. I will say that Milo enjoyed this Christmas more than ever. He tore through his presents like a crazy man. We keep things low key, sticking to the format of something he wants, something he needs, something to wear, something to read and something to give. This year our "give" was to Make a Wish foundation. It's my hope that with each passing year my children's "something to give" will be the gift they're most excited about.

Ellis is doing well. We've been able to up her bottle amount and she's keeping it all down. She's actually even starting to get some chub in her cheeks! It's so good to see her with a little more meat on her bones. Her swelling is still completely gone and her muscles are starting to relax a bit. We've also been able to almost completely wean her off her pain meds. She went from doses every 4 hours to one dose a day, in the evening. Her main issue continues to be her eyes. They are both completely open and at least 60% of the time they are both lined up perfectly. I can't even begin to say what an improvement this has been from the 2 weeks ago when she wouldn't even open her left one. It's going to take time for her muscles to get strong again.

We are still praying mightily for complete healing of her eyes. Besides the small things listed above she continues to look and act exactly like a one month old should. Our continued prayer is that as she ages she continues to hit her milestones as she should. As she does, each one of them will be a miracle.

Big brother Milo is doing well. He missed Mama quite a bit when I was in the hospital and reminds me time and time again he doesn't want me to go back. I've been trying to spend lots of time with him making up for it. One of those moments was 2 days ago when we were surprised with a yard full of gorgeous snow. He was so excited to play in it for the first time ever. We spent hours outside and had the best time.

As for me, well, I'm tired. I went straight from having a baby to 3 highly intense weeks with her in the hospital. Now we are home and I don't get a lot of sleep to recoup. The situation we went through would be traumatic for ANYONE and it's completely normal to have to work through some of the after affects that follow. That's what we are doing now. I'd be lying if I said it's a cake walk. There's much ahead of us and lots of uncertainty. Thinking about it makes my heart hurt. But in this situation I'm reminded to continually cast my cares, anxiety and worry on Him for He cares for us. I could use your prayers as we continue ahead.

Thanks for checking in on us. Below are some pictures of Milo and I playing in the snow. Also, a picture of him cuddling on the couch with Ellis when he came inside. I cannot even begin to tell you how much this boy adores his baby sister. I'm so blessed by my two babies.

IMG_7355-0.JPG

IMG_7354-0.JPG

IMG_7384-0.JPG